Marion Koerper, MD Professor Emerita on Recall
Department of Pediatric Hematology
School of Medicine University of California, San Francisco
(UCSF) School of Medicine
National Hemophilia Foundation
Jennifer Maahs, RN, PNP, MSN
Indiana Hemophilia and Thrombosis Center
Celynda G. Tadlock, PharmD, MBA
Vice President Pharmacy Business Development, Aetna
President, Coventry Prescription Management Serivces, Inc.
Hemophilia Quick Facts
- Patients treated at a Hemophilia Treatment Center (HTC) demonstrate significantly better outcomes in terms of morbidity and mortality as a result of the HTC clinical staff experience and training, the use of guideline-based care, patient access to research protocols, and the comprehensive care model itself.
- HTCs need to adopt well-defined metrics so payer stakeholders can evaluate standardized measures to determine the value of care delivered by HTCs. Data collection and reporting by the HTC’s is important to develop standard care guidelines and monitor quality.