Hemophilia Management

Hemophilia Quick Facts

Hemophilia Cost Management Best Practices Include:

  • Patient/family education regarding the signs and symptoms of a bleeding episode
  • Enrollment in a home treatment program to ensure prompt treatment of bleeding episodes
  • Ongoing monitoring by staff to facilitate optimal treatment plans
  • Ensure that the factor dose dispensed is within the recommended +10% of the prescribed dose (i.e., assay management) to ensure the appropriate clinical response and minimize overutilization
  • Ensure that pharmacy benefits managers (PBMs), 340 B programs, and specialty pharmacy providers (SPPs) deliver necessary patient services, including ancillary supplies, education, nursing services, and factor management
  • Minimize potential waste or over-stocking by developing prescription refill protocols that prohibit automatic shipping
  • Prevent expensive complications by coordinating with hospitals and other providers to plan for elective and emergency situations
  • Monitor and evaluate the total cost of care, including inpatient and emergency services, to evaluate use of avoidable acute care

Questionnaire

Q: What best describes your primary role?

Q: Approximately how many patients with hemophilia are being managed in your organization or practice setting?

Q: Which of the following aspects of hemophilia care has the greatest impact on total costs?

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Expert Interview

Introduction

Advisory Board

Marion Koerper, MD Professor Emerita on Recall
Department of Pediatric Hematology
School of Medicine University of California, San Francisco
(UCSF) School of Medicine
Medical Advisor
National Hemophilia Foundation

Jennifer Maahs, RN, PNP, MSN
Nurse Practitioner
Indiana Hemophilia and Thrombosis Center

Celynda G. Tadlock, PharmD, MBA
Vice President Pharmacy Business Development, Aetna
President, Coventry Prescription Management Serivces, Inc.