Case Scenario Part 3:
School Age

– Jeffrey, now aged 5 years, has just started kindergarten

 

• School staff are worried because they have never had a child with hemophilia

– Medical history

 

• Diagnosed with severe hemophilia A after a bleeding episode that occurred following his circumcision at 2 days of age
• Has received factor replacement therapy as needed and prophylactically throughout his childhood
• Continues on every-other-day prophylaxis for his severe hemophilia A
• No recent hospitalizations for bleeding episodes

– Current status

 

• Teachers and administrators are unsure if Jeffrey should be allowed to participate in all physical education or have his activities limited

– A representative from the local HTC visits the school and completes an education session with Jeffrey’s teacher and the school nurse

– Jeffrey’s mother is present and helps develop a plan for parental contact during emergencies